The topic I have chosen to focus on from my fieldwork experience is poeple with down syndrome. Below are three online communities that are related to this topic...
Down Syndrome.com is a site to help make communities more informed and accomodating to those with downsyndrome. This website is a place where people can interact with friends, share stories, get the word out about inportant issues, and even share photo's of their loved ones...
"The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome" (ndss, 2011). This website offers a wide range of information. From topic such as healthcare guidelines and growth charts, to early intervention and family issues. It is also a society that has no registry fee.
The goals of Down Syndrome Community are to:
- Build a caring, understanding, supportive community open to all individuals and families whose lives include a person with Down syndrome.
- Share and nurture a climate where every human being is recognized, their strengths appreciated, and their accomplishments respected and valued.
- Strengthen the network of individuals and groups working with issues affecting the lives of those with developmental disabilities and their families.
February 2011 | 2/19 Saturday Time: 5:00-8PM | Highland Community Center 14224 Bel-Red Road Bellevue, WA Contact: Sean King, 425-228-3391 | |
| March 2011 | 3/1 Tuesday 7 PM | Board Meeting (Open to all members) | Pacific Market Center 6100 4th Avenue South Seattle WA 98108 |
| March 2011 | 3/2 Thursday 3/21 Monday | | |
| April 2011 | 4/16 Saturday 9AM-3PM | Blackriver Training & Conference Center |
Potential ethical issues that may arise are issues such as the use of personal information and pictures. There is no protection of what is posted by the users. It is all there at the worlds disposal.
References:
n.a. (2011). Down syndrome. Retrieved May 11, 2011 from http://downsyndrome.com/
n.a. (2011). ndss. Retrieved May 11, 2011 from http://www.ndss.org/index.php?option=com_content&view=category&id=37&Itemid=58
n.a. (n.d.) Down syndrome community. Retrieved May 11, 2011 from http://www.downsyndromecommunity.org/index.html
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